Newlife the Charity for Disabled Children is calling on local heroes to come forward to raise funds for 21 disabled and terminally ill children in Lancashire who are in desperate need of disability equipment.
Newlife needs to raise £39,622 so it can provide all 21 children with the disability equipment they urgently need to reduce pain, prevent their conditions from deteriorating and to help them do everyday things most of us take for granted.
Newlife is the UK’s largest charity providing specialist equipment to disabled and terminally ill children. In the last year the charity has helped 56 children across Lancashire, including teenager Erin Gregson from Bolton whose parents can now take her out for more than a few of hours at a time now she has a portable hoist. Newlife also provided a specialist seat for three-year-old Poppy Kettleborough from Great Harwood that provides both the support and comfort she needs while she is being fed through a tube in her stomach.
Consultant nurse at Newlife, Karen Dobson, said: “One of the most heart-breaking parts of my job is when we have to say no to a child and family who are in desperate need of help because we simply don’t have the funds available.
“I know it’s hard to believe but the reality is that many of these children have already been refused essential equipment by their local health services. That is why they turn to us, but unfortunately we haven’t got the funds to help them right now.”
There are one million disabled children in Great Britain and as the largest charity providing of specialist disability equipment in the UK, Newlife receives hundreds of calls each week from families, many of whom have been refused the help they need by their local health services. Sadly, without the support of the local community, Newlife is unable to fund every application it receives.
One of these children is three-year-old Louisa Spindler-Duckworth, who has Cerebral Palsy. Her muscles are floppy and she’s unable to crawl, sit, walk or talk. She has a specialist bed at her mum’s home in Lytham St Anne’s that can be tilted to help control the symptoms of reflux and so she doesn’t choke. When she stays at her dad’s she’s in an ordinary travel cot – which means she’s at risk of choking or worse.
Mum Marilia Spindler said: “It’s really important for her to be able to stay with her dad, and it would be such a big relief to have the right bed there because it’s difficult to take care of her without one.”
Newlife’s Head of Charity Operations, Stephen Morgan, said: “Across the UK, disabled and terminally ill children suffer avoidable pain and worsening conditions when they can’t get the right equipment at the right time – no child should have to endure this.
“Although we’ve been able to help some children including Erin and Poppy we desperately need kind hearted locals to help us raise money so we can help all 21 of the disabled and terminally ill children in Lancashire – we literally can’t do it without your help. Every penny you give will genuinely be used to save and change young lives in Lancashire.”
You can make a donation by visiting the website www.newlifecharity.co.uk/lancashire or by calling the Newlife fundraising team on 0800 988 4640. 100% of money raised will be used to help a child in need in your county.