Nine-year-old Xander Thomas, from Penryn in Cornwall, needs a power pack for his wheelchair. His current chair is simply too heavy and his mum suffers from a back condition that makes pushing Xander up the hills that surround the family’s home impossible. Without the power pack Xander so desperately needs, he and his mum are trapped indoors.
Mum Sharon said: “I just can’t take him out anywhere and I feel bad because it’s too much for me to manage on my own. The isolation is damaging for both of us and we really feel that Xander would benefit from being able to get out more. We used to do a lot of walking together as a family but these days we don’t because it is too much of a struggle with Xander’s wheelchair.”
Xander is the only child in the UK to be diagnosed with his condition, which is a collagen binding gene disorder. Xander is visual and hearing impaired and has sensory seizures. Being outside can trigger a seizure at any time, so it is essential that Xander has his wheelchair with him at all times. His parents asked local statutory services for help but were told that a power pack wasn’t something they would fund, so the family turned to Newlife, the Charity for Disabled Children. The charity would like to help Xander but need to raise £821 to make this happen.
Stephen Morgan, Head of Operations at Newlife said: “We are calling on companies, groups and individuals locally, to be a hero and donate to help Xander get the equipment he needs to improve his quality of life and help his family too.”
If you can help Xander or other disabled or terminally ill children in Cornwall, please go to www.newlife.co.uk/cornwall or email firstname.lastname@example.org. Telephone donations can be made by calling 01543 462777.
Right now, Newlife has four disabled and terminally ill children in Cornwall in need of specialist equipment and must raise £8,277 to help them. Newlife has already supported 112 children across Cornwall and any funds raised over the amount needed to help Xander will be used to help other children in the county.
Stephen added: “We have dozens of applications every day and while we want to help as many children as we can, we do need help to do this. That is why we are appealing to local people from Cornwall to help Xander.”
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