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A brain bleed at birth means that although Louisa Spindler-Duckworth has just celebrated her third birthday, she can’t crawl, sit without help, walk or talk. She has a specialist bed at her mum’s Lytham St Anne’s home to keep her safe and comfortable at night, but she needs the same equipment at her dad’s home to ensure she can continue to spend time with him there. 

Louisa has Cerebral Palsy which has resulted in her muscles being very floppy. She also suffers from epileptic seizures which are currently controlled by medication. The specialist bed she has at her mum’s home helps with controlling the symptoms of reflux, and as mum is able to tilt the bed, Louisa can be properly supported so she doesn’t choke. But at her dad’s home she sleeps in a travel cot – which is quickly becoming too small.

Mum Marilia Spindler said: “Louisa spends half her time with me and half her time with her dad, Lee Duckworth. It’s important for her to stay with her dad and it’s an arrangement that works for us all, we don’t want to change that, but the NHS can’t afford to fund another bed – which is why we have applied to Newlife the Charity for Disabled Children.

Newlife is the largest UK charity providing specialist equipment to children with disabilities and terminal illness. Newlife wants to give Louisa the £1,332 specialist bed she needs and has already raised £534 but is appealing to local people to help raise or donate the £888 still needed. You can give by visiting www.newlifecharity.co.uk/lancashire or emailing local@newlifecharity.co.uk. Telephone donations can be made by calling 01543 462777. 

Marilia added: “It would be such a big relief to have this bed for her dad’s house – she is a happy and chilled little lady and we, as parents, need to ensure she is safe. She can be very floppy and suffers from bad reflux, and therefore it’s difficult to take care of her without a specialist bed.”

Right now, Newlife has 22 disabled and terminally ill children in Lancashire in need of specialist equipment and must raise £29,068 to help them. Newlife has already supported 492 children across Lancashire.

Newlife’s Head of Charity Operations Stephen Morgan says: “We really want to help change the lives of these children and their families, so we are calling on local individuals, groups, clubs and companies to get involved and support them too. If you think you could help by donating or fundraising, please visit www.newlifecharity.co.uk/lancashire.  Alternatively, contact Suzie or a member of the team on 01543 462777 or email local@newlifecharity.co.uk.

Any funds raised above what is needed for Louisa will be used to help other disabled and terminally ill children in Lancashire

Stephen added: “Without this help, many will sadly go without.”

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