We are leading the way to highlight the plight of disabled and terminally ill children who, through a lack of equipment, are left in pain, at risk and unsupported. This important issue has now been highlighted by Fiona Smith, the professional lead for children and young people's nursing at the Royal College of Nurses.
If you believe that every disabled child in the UK should have the equipment they need and you know of anyone who is unaware of the massive impact that pain, distress, worsening health, risk of injury, isolation has to young lives - then please share this article with them via social media.
If Newlife is to help more children get the vital equipment they need, we need people to support us by spreading this message. We need volunteers and fundraisers, to help us fight back. Today we have 526 children in need of essential equipment to support their specialist needs, costing £572,000. In most of these cases the local statutory services have said ‘No'. Front line professionals across the UK are diligently trying every day to help disabled and terminally ill children but are frustrated. Their hands are tied by lack of equipment to help children in real need.
Every day Newlife has to sign off ‘Fast Track' grants to ‘rescue' children - we are effectively running a national ‘Emergency Service.' We are calling on all professionals, organisations, MP's and caring individuals to support Newlife's campaign for better provision - ‘the right equipment at the right time.