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Newlife exists because if it was your child, you would want the very best for them

Active Medical Research

Below are the details of the ongoing research that Newlife is funding. We offer two types of grants - Full and Start Up.

Full Grants

Date Research Area Institution
03-Feb-2017 Autism - Discovery of new gene (KPTN) as cause of Autism University of Exeter Medical School
03-Feb-2017 Spina Bifida - Searching for New Genes in Spina Bifida University College London Hospitals NHS
03-Feb-2017 Understanding the Developmental Delay in Kabuki Syndrome St Mary's Hospital
03-Feb-2017 Ushers Syndrome - Stem Cell therapy for Ushers Syndrome University College London
21-Jan-2016 Bladder Exstrophy St Mary's Hospital
21-Jan-2016 Melanocytic Naevus Syndrome Institute of Child Health UCL
21-Jan-2016 Muscular Dystrophy - Muscular Dystrophy - Neural Defects in Neurones Institute of Child Health UCL
21-Jan-2016 Primary Ciliary Dyskinesia - Gene Therapy Ciliary Dyskinesis Institute of Child Health UCL
21-Jan-2016 Urofacial Syndrome - Therapy for Congenital Neuropathy of Bladder University of Manchester
25-Mar-2015 Aicardi Goutieres Syndrome - Brain Inflammation in Aicardi Goutieres Syndrome University of Edinburgh
25-Mar-2015 Bardet-Biedl Syndrome - Bardet - Biedl Cognitive impairment Institute of Child Health UCL
25-Mar-2015 Intellectual Disability - Intellectual Disability - Beyond Genetic Diagnosis University of Cambridge
25-Mar-2015 Leukoencephalopathy - Leukoencephalopathy Calcifications and Cysts University of Manchester
25-Mar-2015 Mucopolsaccharidosis II - Stem Cell Thearpy University of Manchester
25-Mar-2015 Prematurity - Brain Fitness in Preterm Babies Kings College London
24-Oct-2014 Stem Cell Treatment - Neuroprotection of Developing Brain Institute of Child Health UCL
04-Feb-2014 Craniofacial Disorders - Oculoauriculvertbral & Craniofacial Disorders University of Manchester
08-Feb-2013 3M syndrome - 3M syndrome pathways Institute of Child Health UCL
08-Feb-2013 Congenital Blindness - Therapy - Congenital Blindness Institute of Child Health UCL

Start Up Grants

Date Research Area Institution
22-Mar-2017 Congenital heart disease - Exosome signalling in heart development University of Bristol
22-Mar-2017 Di George - Di George Syndrome and abnormal methylation University of Sheffield
22-Mar-2017 Megalencephaly - Megalencephaly and Cortical Malformation University of Leeds
22-Mar-2017 Muscular Dystrophy - Congenital muscular dystrophy St George's Hospital
03-Feb-2017 Intenational Beckwith-Wiedemann Consunsus Meeting University of Cambridge
27-Jan-2017 Epidermolysis Bullosa with Muscular Dystropy - Centre for Cell Biology and Cutaneouse Research
27-Jan-2017 Exploring a new gene (DNMT3A) in developmental delay & overgrowth Royal Devon and Exeter NHS Foundation Trust
29-Apr-2016 Mitrochondrial Diseases - Mitrochondrial Diseases - New Novel Treatments University of Oxford
16-Mar-2016 Cone- Rod Dystrophy - Childhood Blindness (cone-rod dystrophy) Royal Devon and Exeter NHS Foundation Trust
16-Mar-2016 Craniosynostosis - Treatment of Craniosynostosis Institute of Child Health UCL
16-Mar-2016 Epidermolysis Bullosa - Epidermolysis Bullosa - skin formation Blizard Institute
16-Mar-2016 Lung Malformation - Lung Malformation Registry University of Southampton
16-Mar-2016 Motor Neuron Disease The Robert Jones and Agnes Hunt Orthopaedic Hospital NHS Foundation Trust
16-Mar-2016 Neurofibromatosis - Treatment of Neurofibromatosis University of Manchester
16-Mar-2016 Short Bowel - Management of Short Bowel University of Oxford
16-Mar-2016 Ushers Syndrome - Retinal Dystrophies Screening Tool Institute of Child Health UCL
16-Mar-2016 Weidmann-Steiner Syndrome - The WiSH Study Great Ormond Street Hospital
21-Jan-2016 Deafness - Sensorineural Deafness University of Exeter Medical School
21-Jan-2016 Non-Ketotic Hyperglycinemia Institute of Child Health UCL
26-Oct-2015 Osteogensis Impefecta - Inherited Bone Fragility Sheffield Children's Hospital
25-Mar-2015 Neurofibromatosis - Gene Splicing in Neurofibromatosis University of Southampton
25-Mar-2015 PURA Syndrome - PURA Mutations University of Southampton
21-Oct-2014 Autism - Fragile Bones & Autism - Novel Phemotype Sheffield Children's Hospital
21-Oct-2014 Club Foot - Club Foot Abnormalities & Quality of life study Oxford University Hospital NHS Trust
21-Oct-2014 Hip Dysplasia Study Institute of Child Health UCL
18-Mar-2013 Mitochondrial Disease - Evaulauating Mitochondrial DNA Institute of Child Health UCL



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