Amelia Simpson is just five-years-old – but she can’t leave her house to enjoy her school summer holidays. Amelia, from Somerford in Cheshire, has Rhett Syndrome, which means she can have more than 20 seizures a day. Because of her seizures, Amelia is very unsteady on her feet and can’t walk outdoors without help – she urgently needs a specialist buggy.
Mum, Jillian, said: “We have got to the point where Amelia and I will have to stay at home while my husband takes our son, Taylor, out to the park or for a walk – we can’t go together as a family – we are missing out on spending time together. The school run is also very difficult – at the moment I have to carry her which isn’t a good solution for either of us.
“Amelia is an amazing little girl – she is always smiling, even after she has had a seizure. It took us a long time to get a diagnosis and we don’t know how much time we have left with her – the future is very uncertain. We just want to make the most of it and make some memories together.”
After being offered just £247 towards the equipment by statutory services, Jillian turned to Newlife, The Charity for Disabled Children, which has £700 available but needs a further £1,653 to help Amelia enjoy being with her family.
Newlife’s Care Services Manager, Carrick Brown, says: “We really want to help Amelia so we are appealing to local people to donate or fundraise to help her and her family so she doesn’t go without.”
There are now more disabled children in the UK than ever before, with thousands having to turn to Newlife for help. Families of disabled and terminally ill children are having to ‘battle’ with local services, just to get even basic help and equipment and yet, they still face heart breaking refusals. Newlife comes to the rescue – we save and change lives across the UK, every day.
But Newlife can’t do this alone – Please help us to change Amelia’s life today.
Any money raised above what is needed for her will be used to help other disabled and terminally ill children in Cheshire.
Pictured: Amelia Simpson