A disabled children’s charity is seeking kind-hearted people in Cornwall to raise funds to help a severely disabled five-year-old girl get a decent night’s sleep.
Charlina Haydney, needs a specialist bed because she cannot talk, walk and has no awareness of danger. Charlina’s brain is underdeveloped due to a diagnosis of Cerebellum Hypoplasia with CASK/RELN.
She has to be constantly supervised, relies on her carers for all her needs and is currently sharing a bed with her parents after falling dangerously from her own bed three months ago.
Her parents approached Newlife Foundation for Disabled Children to fund a £7,700 specialist bed which has high sides and safety features after they were told that Statutory Services could not help.
Charlina lives with her parents Martyn and Josephine Haydney. Mrs Haydney is her full-time carer and feels the current situation is affecting family life. She said: “Charlina’s bed is no longer suitable as she woke up in the middle of the night and fell out of it in a dangerous way. Statutory Services will not fund a new bed and we had no choice but to let her sleep in our bed which has been going on for three months. Charlina can’t do anything herself so she at least needs a decent night’s sleep. This can’t continue as it could destroy our family life.”
Since 2005 Newlife has spent £216,926 in Cornwalland helped 95 children but the charity receives no government funding to complete its work. Newlife is appealing to people inCornwall to help as calls to the Newlife Nurse Helpline have increased by 73 per cent on last year illustrating the growing needs of disabled children.
The charity is currently trying to raise £14,046 to help four children inCornwall who need essential equipment.
Newlife CEO Sheila Brown, OBE, said: “There is huge demand and because of this we are calling on anyone to help us raise money to fund equipment for children like Charlina inCornwall. Newlife guarantees that 100 per cent of any gift or donation will go directly to help disabled children in the area.”
Newlife can guarantee that 100 per cent of gifts and donations will go directly towards providing specialist equipment for children in need. This is possible because the charity operates its own trading company, which exists purely to support the aims of Newlife Foundation and covers all administration costs.
Any money raised surplus to requirements for Charlina will help support other disabled and terminally-ill children inCornwall.
Contact the Newlife Community Fundraising Team on freephone 0800 988 4640 for further details.
Anyone who wants to supply equipment directly to the family, please contact Newlife.