Wednesbury pub The Brunswick is supporting a local couple’s fundraising bid to help provide a specialist bed for their disabled son.
Kyla and Kiy Jones are organising a fundraising evening of entertainment at the Crankhall Lane pub on Friday 7 February, with proceeds donated to Newlife Foundation for Disabled Children which is working with the family to provide a £5,939 Safespace to keep five-year-old Kenzy safe at night.
Kenzy, from Walsall, was diagnosed with Autism Spectrum Disorder at the age of three; more recently he has experienced seizures and is being monitored for epilepsy. He currently sleeps in a standard cot but has no awareness of danger and injures himself on the sides, which he also climbs over – causing disruption in the bedroom he shares with his older brother who has Cerebral Palsy.
Kyla Jones said: “Kenzy will not stay put in a normal cot or bed so one of us has to stay with him each evening until he gets to sleep so we know he is safe and not disturbing his brother. That usually takes three to four hours.”
Although a specialist Safespace would help keep Kenzy safe, his parents have been told by health professionals that there is no statutory funding available. So they turned to locally-based Newlife Foundation for help. Newlife has its headquarters in Cannock, Staffordshire, and recently announced it had hit the £10million landmark in terms of funding specialist equipment for disabled and terminally ill children around the UK.
However, statutory cutbacks across the country have led to a surge in applications to the charity for vital equipment to facilitate everyday life – items like wheelchairs and walkers for mobility, communication aids to give children a voice, specialist car seats so they can travel in safety . . . and beds like this one for Kenzy.
This surge in demand for services has prompted Newlife to call for ‘local heroes’ to come forward to fundraise or donate towards the cost of specialist equipment for children in their county. The Brunswick has stepped forward to support this event, which will feature top drag artist Anett Curtain, prize bingo and karaoke. Tickets are £5 each and are available in advance from the pub. Entry to the event, which starts at 7pm on February 7, will be by ticket only.
If you would like to donate towards the cost of Kenzy’s bed go to: www.justgiving.com/Kenzy-Jones Any money raised surplus to Kenzy’s requirements will be used to fund equipment for other children in the West Midlands.
Pictured: Kenzy with his twin sister Kaidi-Leigh.