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Eight-year-old Levente Kerek, from Bury, has a rare genetic muscle condition and as a result is a full-time wheelchair user. He has a hi-tech electric wheelchair for use outside the home, but this is too big to fit indoors so he is constantly swapping from one piece of equipment to another.

He needs a specialist seat that can be switched between his manual and electric wheelchairs, so his postural support is seamlessly maintained to help prevent additional health issues.

Now Newlife Foundation for Disabled Children is looking for ‘local heroes’ who can help us make this happen. We already have £531 towards this vital piece of equipment, which costs £1,593; this leaves £1,062 to fund.

We need donors and fundraisers who want to really make a difference, helping us transform Levente’s everyday life. To find out how you can support him, go to Alternatively, contact the Newlife County Liaison Team on 01543 431 444, email

Newlife guarantees that 100 per cent of monies donated or fundraised in Greater Manchester will be used to specifically help children with disabilities and terminal illness in the area. Any money raised surplus to requirements for Levente will be used to help other local children.

Levente has Myotubular Myopathy, which is a life-limiting condition, and a wheelchair is vital for his mobility. Mum Nikoletta Veres explains: “Levente has a large electric wheelchair which he uses in school, but his bedroom isn’t big enough for it so we use a manual chair at home. A lightweight seat that we can easily transfer from one wheelchair to the other would make a big difference.”

Pictured: Levente Kerek